Spencer's EEG
Last Monday Spencer had to have a 24 hour EEG at Children's to rule out any mini-seizures. He & I went to Little Rock Monday morning and stayed that night. He was such a big boy. Getting all of the EEG leads on was very hard for him. It took about 20 minutes or so and he cried and screamed the whole time. I was on his bed holding his legs and arms down. At one point he looked right into my eyes, stopped screaming and said please, stop, please and kept saying it until he realized I wouldn't help him. That moment was one of the hardest moments of my life this far. He has never been in a situation that he had to call on me like that. Then to not be able to do anything, I was one of the ones holding him down. I was so sad, like he felt like he couldn't count on me....I was helping hurt him. Not fun! It was sensory overload for him and I couldn't do anything for him. I wanted to be so strong and I was being strong until he said that, then I just started crying all over him. Bless his little heart, I am sure that did not help him. But once that was over he was fine. He almost instantly fell asleep from exhaustion I guess. When he woke up he was very hungry so he ate and watched the Bee Movie. The TV had a bunch of movies programed in it. That was wonderful and he got room service, anything..anytime. So he ate like a king while he was there. The good news is he is not having seizures. The neurologist did recommend him to have a MRI to cover all our bases. That will be some time before the end of the year but I pray he never has to have another EEG. He is a really good boy.
Last Monday Spencer had to have a 24 hour EEG at Children's to rule out any mini-seizures. He & I went to Little Rock Monday morning and stayed that night. He was such a big boy. Getting all of the EEG leads on was very hard for him. It took about 20 minutes or so and he cried and screamed the whole time. I was on his bed holding his legs and arms down. At one point he looked right into my eyes, stopped screaming and said please, stop, please and kept saying it until he realized I wouldn't help him. That moment was one of the hardest moments of my life this far. He has never been in a situation that he had to call on me like that. Then to not be able to do anything, I was one of the ones holding him down. I was so sad, like he felt like he couldn't count on me....I was helping hurt him. Not fun! It was sensory overload for him and I couldn't do anything for him. I wanted to be so strong and I was being strong until he said that, then I just started crying all over him. Bless his little heart, I am sure that did not help him. But once that was over he was fine. He almost instantly fell asleep from exhaustion I guess. When he woke up he was very hungry so he ate and watched the Bee Movie. The TV had a bunch of movies programed in it. That was wonderful and he got room service, anything..anytime. So he ate like a king while he was there. The good news is he is not having seizures. The neurologist did recommend him to have a MRI to cover all our bases. That will be some time before the end of the year but I pray he never has to have another EEG. He is a really good boy.
He is so precious and adorable here.
He just wanted me to take a picture of his bandaid.
Spencer is so dang sweet here. He certainly has Michael and Papa's chin.
This was right before we went home. He got a little crazy once he wasn't hooked up to anything.
This is the road down to the natural bidge of Arkansas (close to Clinton). We did not get to see the bridge but the drive down to it was georgous.
1 comment:
I am glad that there are no seizures, but so sad that you had such a hard time. I can't imagine...you are such a strong wonderful mom. I hope you realize that!!! Spencer was born to the right parents...he is such a lucky little boy!!!! I love you!!!!
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